Charity profile · Historical source record

Charcot-Marie-Tooth Association

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Seeking a cure for CMT while improving the quality of life for those affected by it

The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

87.39Overall score
out of 100

82.18Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$3,138,829

Total expenses · USD$2,539,687

Program expenses

$2,130,797.39 recorded amount

83.9%

Fundraising expenses

$297,143.38 recorded amount

11.7%

Administrative expenses

$109,206.54 recorded amount

4.3%

Fundraising efficiency: $0.19 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Amy Gray
Recorded compensation: $152,692.00
Recorded compensation percentage: 6.01%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Charcot-Marie-Tooth Association
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.
`ein` EIN	22-2480896
`tot_exp` Total expenses	2539687.0
`admin_exp_p` Administrative expense fraction	0.043
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.19
`fund_exp_p` Fundraising expense fraction	0.11699999999999999
`program_exp_p` Program expense fraction	0.8390000000000001
`fscore` Financial score	82.18
`leader` Recorded leader	Amy Gray
`leader_comp` Recorded leader compensation	152692.0
`leader_comp_p` Recorded leader compensation fraction	0.0601
`motto` Tagline	Seeking a cure for CMT while improving the quality of life for those affected by it
`name` Charity name	Charcot-Marie-Tooth Association
`tot_rev` Total revenue	3138829.0
`score` Overall score	87.39
`state` State code	PA
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	small
`program_exp` Program expenses	2130797.393
`fund_exp` Fundraising expenses	297143.37899999996
`admin_exp` Administrative expenses	109206.541

Identity & classification

At a glance

EIN: 22-2480896
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: Pennsylvania (PA)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

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Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.