Charity profile · Historical source record

Cystinosis Research Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

CRF is the largest provider of grants for cystinosis research in the world, funding over 151 studies in 12 countries.

The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is on-going and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

90.72Overall score
out of 100

86.88Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$4,857,558

Total expenses · USD$3,037,548

Program expenses

$2,366,249.89 recorded amount

77.9%

Fundraising expenses

$525,495.80 recorded amount

17.3%

Administrative expenses

$139,727.21 recorded amount

4.6%

Fundraising efficiency: $0.13 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Nancy Stack
Recorded compensation: $0.00
Recorded compensation percentage: 0.00%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Cystinosis Research Foundation
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is on-going and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment.
`ein` EIN	32-0067668
`tot_exp` Total expenses	3037548.0
`admin_exp_p` Administrative expense fraction	0.046
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.13
`fund_exp_p` Fundraising expense fraction	0.17300000000000001
`program_exp_p` Program expense fraction	0.779
`fscore` Financial score	86.88
`leader` Recorded leader	Nancy Stack
`leader_comp` Recorded leader compensation	0.0
`leader_comp_p` Recorded leader compensation fraction	0.0
`motto` Tagline	CRF is the largest provider of grants for cystinosis research in the world, funding over 151 studies in 12 countries.
`name` Charity name	Cystinosis Research Foundation
`tot_rev` Total revenue	4857558.0
`score` Overall score	90.72
`state` State code	CA
`subcategory` Subcategory	Medical Research
`size` Source size label	small
`program_exp` Program expenses	2366249.892
`fund_exp` Fundraising expenses	525495.804
`admin_exp` Administrative expenses	139727.20799999998

Identity & classification

At a glance

EIN: 32-0067668
Source category: Health
Source subcategory: Medical Research
Recorded location: California (CA)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

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Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.