Charity profile · Historical source record

Foundation for Prader-Willi Research

EIN 31-1763110HealthCaliforniaSmall

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Working toward an independent future
The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

91.78Overall score
out of 100
96.27Financial score
out of 100
89.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$3,216,501
Total expenses · USD$2,999,798

Program expenses

$2,420,836.99 recorded amount
80.7%

Fundraising expenses

$284,980.81 recorded amount
9.5%

Administrative expenses

$290,980.41 recorded amount
9.7%
Fundraising efficiency
$0.08 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader
Susan Hedstrom
Recorded compensation
$89,213.00
Recorded compensation percentage
2.97%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Foundation for Prader-Willi Research
Source fieldOriginal source value
ascore
Accountability & transparency score
89.0
category
Category
Health
description
Mission & description
The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.
ein
EIN
31-1763110
tot_exp
Total expenses
2999798.0
admin_exp_p
Administrative expense fraction
0.09699999999999999
fund_eff
Fundraising efficiency ($ per $1 raised)
0.08
fund_exp_p
Fundraising expense fraction
0.095
program_exp_p
Program expense fraction
0.807
fscore
Financial score
96.27
leader
Recorded leader
Susan Hedstrom
leader_comp
Recorded leader compensation
89213.0
leader_comp_p
Recorded leader compensation fraction
0.0297
motto
Tagline
Working toward an independent future
name
Charity name
Foundation for Prader-Willi Research
tot_rev
Total revenue
3216501.0
score
Overall score
91.78
state
State code
CA
subcategory
Subcategory
Medical Research
size
Source size label
small
program_exp
Program expenses
2420836.986
fund_exp
Fundraising expenses
284980.81
admin_exp
Administrative expenses
290980.40599999996

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.