Charity profile · Historical source record

FSH Society

EIN 52-1762747Health Massachusetts Small

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Facioscapulohumeral muscular dystrophy

The FHS Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSH Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

95.03Overall score
out of 100

92.98Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$3,253,712

Total expenses · USD$2,423,238

Program expenses

$1,972,515.73 recorded amount

81.4%

Fundraising expenses

$196,282.28 recorded amount

8.1%

Administrative expenses

$249,593.51 recorded amount

10.3%

Fundraising efficiency: $0.07 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Mark Stone
Recorded compensation: $61,153.00
Recorded compensation percentage: 2.52%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for FSH Society
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	The FHS Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSH Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.
`ein` EIN	52-1762747
`tot_exp` Total expenses	2423238.0
`admin_exp_p` Administrative expense fraction	0.10300000000000001
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.07
`fund_exp_p` Fundraising expense fraction	0.081
`program_exp_p` Program expense fraction	0.8140000000000001
`fscore` Financial score	92.98
`leader` Recorded leader	Mark Stone
`leader_comp` Recorded leader compensation	61153.0
`leader_comp_p` Recorded leader compensation fraction	0.0252
`motto` Tagline	Facioscapulohumeral muscular dystrophy
`name` Charity name	FSH Society
`tot_rev` Total revenue	3253712.0
`score` Overall score	95.03
`state` State code	MA
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	small
`program_exp` Program expenses	1972515.732
`fund_exp` Fundraising expenses	196282.27800000002
`admin_exp` Administrative expenses	249593.51400000002

Identity & classification

At a glance

EIN: 52-1762747
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: Massachusetts (MA)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

Related source records

Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.