Charity profile · Historical source record

Prader-Willi Syndrome Association (USA)

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Still hungry for a cure

Organized in 1975, Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations about PWS; an annual national conference for families and professionals; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level. PWS is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

84.42Overall score
out of 100

98.88Financial score
out of 100

78.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$1,436,803

Total expenses · USD$1,917,524

Program expenses

$1,555,111.96 recorded amount

81.1%

Fundraising expenses

$103,546.30 recorded amount

5.4%

Administrative expenses

$256,948.22 recorded amount

13.4%

Fundraising efficiency: $0.07 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Kenneth R. Smith
Recorded compensation: $79,093.00
Recorded compensation percentage: 4.12%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Prader-Willi Syndrome Association (USA)
Source field	Original source value
`ascore` Accountability & transparency score	78.0
`category` Category	Health
`description` Mission & description	Organized in 1975, Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations about PWS; an annual national conference for families and professionals; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level. PWS is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome.
`ein` EIN	41-1306908
`tot_exp` Total expenses	1917524.0
`admin_exp_p` Administrative expense fraction	0.134
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.07
`fund_exp_p` Fundraising expense fraction	0.054000000000000006
`program_exp_p` Program expense fraction	0.8109999999999999
`fscore` Financial score	98.88
`leader` Recorded leader	Kenneth R. Smith
`leader_comp` Recorded leader compensation	79093.0
`leader_comp_p` Recorded leader compensation fraction	0.0412
`motto` Tagline	Still hungry for a cure
`name` Charity name	Prader-Willi Syndrome Association (USA)
`tot_rev` Total revenue	1436803.0
`score` Overall score	84.42
`state` State code	FL
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	small
`program_exp` Program expenses	1555111.964
`fund_exp` Fundraising expenses	103546.29600000002
`admin_exp` Administrative expenses	256948.21600000001

Identity & classification

At a glance

EIN: 41-1306908
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: Florida (FL)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.