Charity profile · Historical source record

The Cornelia de Lange Syndrome Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Reaching out, providing help, giving hope

Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally. CdLS is a congenital syndrome, and individuals affected have common characteristics such as: low birth weight, slow growth and small stature, small head size, and limb differences.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

92.38Overall score
out of 100

90.00Financial score
out of 100

96.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$962,849

Total expenses · USD$954,105

Program expenses

$825,300.82 recorded amount

86.5%

Fundraising expenses

$63,925.04 recorded amount

6.7%

Administrative expenses

$62,970.93 recorded amount

6.6%

Fundraising efficiency: $0.08 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Morrisette Royster
Recorded compensation: $99,000.00
Recorded compensation percentage: 10.37%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for The Cornelia de Lange Syndrome Foundation
Source field	Original source value
`ascore` Accountability & transparency score	96.0
`category` Category	Health
`description` Mission & description	Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally. CdLS is a congenital syndrome, and individuals affected have common characteristics such as: low birth weight, slow growth and small stature, small head size, and limb differences.
`ein` EIN	06-1057497
`tot_exp` Total expenses	954105.0
`admin_exp_p` Administrative expense fraction	0.066
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.08
`fund_exp_p` Fundraising expense fraction	0.067
`program_exp_p` Program expense fraction	0.865
`fscore` Financial score	90.0
`leader` Recorded leader	Morrisette Royster
`leader_comp` Recorded leader compensation	99000.0
`leader_comp_p` Recorded leader compensation fraction	0.10369999999999999
`motto` Tagline	Reaching out, providing help, giving hope
`name` Charity name	The Cornelia de Lange Syndrome Foundation
`tot_rev` Total revenue	962849.0
`score` Overall score	92.38
`state` State code	CT
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	small
`program_exp` Program expenses	825300.825
`fund_exp` Fundraising expenses	63925.035
`admin_exp` Administrative expenses	62970.93

Identity & classification

At a glance

EIN: 06-1057497
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: Connecticut (CT)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

Related source records

Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.