Charity profile · Historical source record

The Progeria Research Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Together we WILL find the cure!
To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

92.09Overall score
out of 100
88.82Financial score
out of 100
100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$2,147,287
Total expenses · USD$2,362,863

Program expenses

$1,911,556.17 recorded amount
80.9%

Fundraising expenses

$148,860.37 recorded amount
6.3%

Administrative expenses

$300,083.60 recorded amount
12.7%
Fundraising efficiency
$0.08 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader
Meryl Fink
Recorded compensation
$103,000.00
Recorded compensation percentage
4.35%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for The Progeria Research Foundation
Source fieldOriginal source value
ascore
Accountability & transparency score
100.0
category
Category
Health
description
Mission & description
To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.
ein
EIN
04-3460220
tot_exp
Total expenses
2362863.0
admin_exp_p
Administrative expense fraction
0.127
fund_eff
Fundraising efficiency ($ per $1 raised)
0.08
fund_exp_p
Fundraising expense fraction
0.063
program_exp_p
Program expense fraction
0.809
fscore
Financial score
88.82
leader
Recorded leader
Meryl Fink
leader_comp
Recorded leader compensation
103000.0
leader_comp_p
Recorded leader compensation fraction
0.0435
motto
Tagline
Together we WILL find the cure!
name
Charity name
The Progeria Research Foundation
tot_rev
Total revenue
2147287.0
score
Overall score
92.09
state
State code
MA
subcategory
Subcategory
Diseases, Disorders, and Disciplines
size
Source size label
small
program_exp
Program expenses
1911556.1670000001
fund_exp
Fundraising expenses
148860.369
admin_exp
Administrative expenses
300083.601

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.