Charity profile · Historical source record

Angelman Syndrome Foundation

EIN 59-3092842HealthIllinoisSmall

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

I may not speak, but I have much to say
The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

90.57Overall score
out of 100
87.28Financial score
out of 100
96.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$2,234,912
Total expenses · USD$2,446,564

Program expenses

$1,847,155.82 recorded amount
75.5%

Fundraising expenses

$425,702.14 recorded amount
17.4%

Administrative expenses

$171,259.48 recorded amount
7.0%
Fundraising efficiency
$0.18 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader
This organization did not report a CEO
Recorded compensation
Not reported in source
Recorded compensation percentage
Not reported in source

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Angelman Syndrome Foundation
Source fieldOriginal source value
ascore
Accountability & transparency score
96.0
category
Category
Health
description
Mission & description
The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.
ein
EIN
59-3092842
tot_exp
Total expenses
2446564.0
admin_exp_p
Administrative expense fraction
0.07
fund_eff
Fundraising efficiency ($ per $1 raised)
0.18
fund_exp_p
Fundraising expense fraction
0.174
program_exp_p
Program expense fraction
0.755
fscore
Financial score
87.28
leader
Recorded leader
This organization did not report a CEO
leader_comp
Recorded leader compensation
Not reported (blank source field)
leader_comp_p
Recorded leader compensation fraction
Not reported (blank source field)
motto
Tagline
I may not speak, but I have much to say
name
Charity name
Angelman Syndrome Foundation
tot_rev
Total revenue
2234912.0
score
Overall score
90.57
state
State code
IL
subcategory
Subcategory
Diseases, Disorders, and Disciplines
size
Source size label
small
program_exp
Program expenses
1847155.82
fund_exp
Fundraising expenses
425702.136
admin_exp
Administrative expenses
171259.48

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.