Charity profile · Historical source record

Dysautonomia Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

59 years of care, treatment, research and advocacy for the FD population

The Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care and scientific research for the benefit of people afflicted with Familial dysautonomia (FD). The Foundation also conducts social service and public awareness programs for the benefit of the FD community and for those in the general population who may be at risk for FD. FD is a rare genetic disease that affects the autonomic and sensory nervous systems of children from birth. The most striking symptoms of FD are reduced sensitivity to pain and temperature, and the inability to produce tears. But FD is much more than 'no pain and no tears', it affects every major system of the body, causing severe respiratory, cardiac, orthopedic, digestive and vision problems.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

85.38Overall score
out of 100

91.88Financial score
out of 100

81.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$1,713,284

Total expenses · USD$2,427,386

Program expenses

$2,157,946.15 recorded amount

88.9%

Fundraising expenses

$55,829.88 recorded amount

2.3%

Administrative expenses

$208,755.20 recorded amount

8.6%

Fundraising efficiency: $0.04 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Paul Schack
Recorded compensation: $170,831.00
Recorded compensation percentage: 7.03%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Dysautonomia Foundation
Source field	Original source value
`ascore` Accountability & transparency score	81.0
`category` Category	Health
`description` Mission & description	The Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care and scientific research for the benefit of people afflicted with Familial dysautonomia (FD). The Foundation also conducts social service and public awareness programs for the benefit of the FD community and for those in the general population who may be at risk for FD. FD is a rare genetic disease that affects the autonomic and sensory nervous systems of children from birth. The most striking symptoms of FD are reduced sensitivity to pain and temperature, and the inability to produce tears. But FD is much more than 'no pain and no tears', it affects every major system of the body, causing severe respiratory, cardiac, orthopedic, digestive and vision problems.
`ein` EIN	13-6145280
`tot_exp` Total expenses	2427386.0
`admin_exp_p` Administrative expense fraction	0.086
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.04
`fund_exp_p` Fundraising expense fraction	0.023
`program_exp_p` Program expense fraction	0.889
`fscore` Financial score	91.88
`leader` Recorded leader	Paul Schack
`leader_comp` Recorded leader compensation	170831.0
`leader_comp_p` Recorded leader compensation fraction	0.0703
`motto` Tagline	59 years of care, treatment, research and advocacy for the FD population
`name` Charity name	Dysautonomia Foundation
`tot_rev` Total revenue	1713284.0
`score` Overall score	85.38
`state` State code	NY
`subcategory` Subcategory	Medical Research
`size` Source size label	small
`program_exp` Program expenses	2157946.154
`fund_exp` Fundraising expenses	55829.878
`admin_exp` Administrative expenses	208755.196

Identity & classification

At a glance

EIN: 13-6145280
Source category: Health
Source subcategory: Medical Research
Recorded location: New York (NY)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

Related source records

Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.