Charity profile · Historical source record

Dystonia Medical Research Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Working to advance research for more treatments and ultimately find cure for dystonia

The Dystonia Medical Research Foundation (DMRF) was founded in 1976. Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The mission of the DMRF is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. Dedicated to serving the needs of all persons affected with dystonia and their families, the DMRF has grown from a small family-based foundation to a membership-driven organization of approximately 38,000 persons.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

95.85Overall score
out of 100

94.14Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$2,357,386

Total expenses · USD$2,608,986

Program expenses

$2,139,368.52 recorded amount

82.0%

Fundraising expenses

$281,770.49 recorded amount

10.8%

Administrative expenses

$182,629.02 recorded amount

7.0%

Fundraising efficiency: $0.08 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Janet Hieshetter
Recorded compensation: $152,962.00
Recorded compensation percentage: 5.86%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Dystonia Medical Research Foundation
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	The Dystonia Medical Research Foundation (DMRF) was founded in 1976. Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The mission of the DMRF is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. Dedicated to serving the needs of all persons affected with dystonia and their families, the DMRF has grown from a small family-based foundation to a membership-driven organization of approximately 38,000 persons.
`ein` EIN	95-3378526
`tot_exp` Total expenses	2608986.0
`admin_exp_p` Administrative expense fraction	0.07
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.08
`fund_exp_p` Fundraising expense fraction	0.10800000000000001
`program_exp_p` Program expense fraction	0.82
`fscore` Financial score	94.14
`leader` Recorded leader	Janet Hieshetter
`leader_comp` Recorded leader compensation	152962.0
`leader_comp_p` Recorded leader compensation fraction	0.058600000000000006
`motto` Tagline	Working to advance research for more treatments and ultimately find cure for dystonia
`name` Charity name	Dystonia Medical Research Foundation
`tot_rev` Total revenue	2357386.0
`score` Overall score	95.85
`state` State code	IL
`subcategory` Subcategory	Medical Research
`size` Source size label	small
`program_exp` Program expenses	2139368.52
`fund_exp` Fundraising expenses	281770.488
`admin_exp` Administrative expenses	182629.02000000002

Identity & classification

At a glance

EIN: 95-3378526
Source category: Health
Source subcategory: Medical Research
Recorded location: Illinois (IL)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.