Charity profile · Historical source record

Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

EIN 11-2519726Health New York Small

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Because the cost of doing nothing is too great

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national non-profit that provides all inclusive care to those with Epidermolysis Bullosa (EB). Our mission is to fund research and provide free services and programs for those with EB - The Worst Disease You've Never Heard Of.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

93.82Overall score
out of 100

92.24Financial score
out of 100

96.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$1,370,052

Total expenses · USD$1,416,573

Program expenses

$1,191,337.89 recorded amount

84.1%

Fundraising expenses

$158,656.18 recorded amount

11.2%

Administrative expenses

$65,162.36 recorded amount

4.6%

Fundraising efficiency: $0.23 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Brett Kopelan
Recorded compensation: $154,512.00
Recorded compensation percentage: 10.90%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)
Source field	Original source value
`ascore` Accountability & transparency score	96.0
`category` Category	Health
`description` Mission & description	The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national non-profit that provides all inclusive care to those with Epidermolysis Bullosa (EB). Our mission is to fund research and provide free services and programs for those with EB - The Worst Disease You've Never Heard Of.
`ein` EIN	11-2519726
`tot_exp` Total expenses	1416573.0
`admin_exp_p` Administrative expense fraction	0.046
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.23
`fund_exp_p` Fundraising expense fraction	0.11199999999999999
`program_exp_p` Program expense fraction	0.841
`fscore` Financial score	92.24
`leader` Recorded leader	Brett Kopelan
`leader_comp` Recorded leader compensation	154512.0
`leader_comp_p` Recorded leader compensation fraction	0.109
`motto` Tagline	Because the cost of doing nothing is too great
`name` Charity name	Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)
`tot_rev` Total revenue	1370052.0
`score` Overall score	93.82
`state` State code	NY
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	small
`program_exp` Program expenses	1191337.893
`fund_exp` Fundraising expenses	158656.17599999998
`admin_exp` Administrative expenses	65162.358

Identity & classification

At a glance

EIN: 11-2519726
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: New York (NY)
Expense-based size: Small
Under $3.5M in total expenses · source label: small

Explore alongside

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.