Charity profile · Historical source record

GBS|CIDP Foundation International

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.
Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

100.00Overall score
out of 100
100.00Financial score
out of 100
100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$1,839,276
Total expenses · USD$2,303,548

Program expenses

$2,066,282.56 recorded amount
89.7%

Fundraising expenses

$69,106.44 recorded amount
3.0%

Administrative expenses

$163,551.91 recorded amount
7.1%
Fundraising efficiency
$0.04 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader
Elizabeth Butler
Recorded compensation
$140,000.00
Recorded compensation percentage
6.07%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for GBS|CIDP Foundation International
Source fieldOriginal source value
ascore
Accountability & transparency score
100.0
category
Category
Health
description
Mission & description
Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.
ein
EIN
22-2474769
tot_exp
Total expenses
2303548.0
admin_exp_p
Administrative expense fraction
0.071
fund_eff
Fundraising efficiency ($ per $1 raised)
0.04
fund_exp_p
Fundraising expense fraction
0.03
program_exp_p
Program expense fraction
0.897
fscore
Financial score
100.0
leader
Recorded leader
Elizabeth Butler
leader_comp
Recorded leader compensation
140000.0
leader_comp_p
Recorded leader compensation fraction
0.060700000000000004
motto
Tagline
Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.
name
Charity name
GBS|CIDP Foundation International
tot_rev
Total revenue
1839276.0
score
Overall score
100.0
state
State code
PA
subcategory
Subcategory
Diseases, Disorders, and Disciplines
size
Source size label
small
program_exp
Program expenses
2066282.556
fund_exp
Fundraising expenses
69106.44
admin_exp
Administrative expenses
163551.908

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.