Charity profile · Historical source record

National Fragile X Foundation

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Forward
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

89.19Overall score
out of 100
85.25Financial score
out of 100
96.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$1,752,853
Total expenses · USD$1,654,106

Program expenses

$1,258,774.67 recorded amount
76.1%

Fundraising expenses

$77,742.98 recorded amount
4.7%

Administrative expenses

$314,280.14 recorded amount
19.0%
Fundraising efficiency
$0.05 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader
Tony Ferlenda
Recorded compensation
$174,237.00
Recorded compensation percentage
10.53%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for National Fragile X Foundation
Source fieldOriginal source value
ascore
Accountability & transparency score
96.0
category
Category
Health
description
Mission & description
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.
ein
EIN
84-0960471
tot_exp
Total expenses
1654106.0
admin_exp_p
Administrative expense fraction
0.19
fund_eff
Fundraising efficiency ($ per $1 raised)
0.05
fund_exp_p
Fundraising expense fraction
0.047
program_exp_p
Program expense fraction
0.7609999999999999
fscore
Financial score
85.25
leader
Recorded leader
Tony Ferlenda
leader_comp
Recorded leader compensation
174237.0
leader_comp_p
Recorded leader compensation fraction
0.10529999999999999
motto
Tagline
Forward
name
Charity name
National Fragile X Foundation
tot_rev
Total revenue
1752853.0
score
Overall score
89.19
state
State code
DC
subcategory
Subcategory
Diseases, Disorders, and Disciplines
size
Source size label
small
program_exp
Program expenses
1258774.6659999997
fund_exp
Fundraising expenses
77742.982
admin_exp
Administrative expenses
314280.14

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.