Charity profile · Historical source record

National Organization for Rare Disorders

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Alone we are rare. Together we are strong.®

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

98.21Overall score
out of 100

97.47Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$48,131,131

Total expenses · USD$32,990,742

Program expenses

$28,009,139.96 recorded amount

84.9%

Fundraising expenses

$1,319,629.68 recorded amount

4.0%

Administrative expenses

$3,595,990.88 recorded amount

10.9%

Fundraising efficiency: $0.03 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Peter Saltonstall
Recorded compensation: $370,073.00
Recorded compensation percentage: 1.12%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for National Organization for Rare Disorders
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
`ein` EIN	13-3223946
`tot_exp` Total expenses	32990742.0
`admin_exp_p` Administrative expense fraction	0.109
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.03
`fund_exp_p` Fundraising expense fraction	0.04
`program_exp_p` Program expense fraction	0.8490000000000001
`fscore` Financial score	97.47
`leader` Recorded leader	Peter Saltonstall
`leader_comp` Recorded leader compensation	370073.0
`leader_comp_p` Recorded leader compensation fraction	0.011200000000000002
`motto` Tagline	Alone we are rare. Together we are strong.®
`name` Charity name	National Organization for Rare Disorders
`tot_rev` Total revenue	48131131.0
`score` Overall score	98.21
`state` State code	CT
`subcategory` Subcategory	Patient and Family Support
`size` Source size label	big
`program_exp` Program expenses	28009139.958000004
`fund_exp` Fundraising expenses	1319629.68
`admin_exp` Administrative expenses	3595990.878

Identity & classification

At a glance

EIN: 13-3223946
Source category: Health
Source subcategory: Patient and Family Support
Recorded location: Connecticut (CT)
Expense-based size: Large
Above $13.5M in total expenses · source label: big

Explore alongside

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.