Charity profile · Historical source record

Project ALS

EIN 13-4019464Health New York Mid-sized

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Finding & funding a cure for ALS

Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

89.02Overall score
out of 100

85.00Financial score
out of 100

96.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$5,513,484

Total expenses · USD$5,325,775

Program expenses

$4,660,053.12 recorded amount

87.5%

Fundraising expenses

$335,523.83 recorded amount

6.3%

Administrative expenses

$324,872.27 recorded amount

6.1%

Fundraising efficiency: $0.07 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Meredith Estess Hulbert
Recorded compensation: $169,294.00
Recorded compensation percentage: 3.17%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for Project ALS
Source field	Original source value
`ascore` Accountability & transparency score	96.0
`category` Category	Health
`description` Mission & description	Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.
`ein` EIN	13-4019464
`tot_exp` Total expenses	5325775.0
`admin_exp_p` Administrative expense fraction	0.061
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.07
`fund_exp_p` Fundraising expense fraction	0.063
`program_exp_p` Program expense fraction	0.875
`fscore` Financial score	85.0
`leader` Recorded leader	Meredith Estess Hulbert
`leader_comp` Recorded leader compensation	169294.0
`leader_comp_p` Recorded leader compensation fraction	0.0317
`motto` Tagline	Finding & funding a cure for ALS
`name` Charity name	Project ALS
`tot_rev` Total revenue	5513484.0
`score` Overall score	89.02
`state` State code	NY
`subcategory` Subcategory	Medical Research
`size` Source size label	mid
`program_exp` Program expenses	4660053.125
`fund_exp` Fundraising expenses	335523.825
`admin_exp` Administrative expenses	324872.27499999997

Identity & classification

At a glance

EIN: 13-4019464
Source category: Health
Source subcategory: Medical Research
Recorded location: New York (NY)
Expense-based size: Mid-sized
$3.5M–$13.5M in total expenses · source label: mid

Explore alongside

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Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.