Charity profile · Historical source record

The Association for Frontotemporal Degeneration

EIN 41-2073220Health Pennsylvania Mid-sized

Historical collection: May 2019 · Rating details mostly from 2017. Source & context

The mission

What this organization describes

Opening the gateway to help and a cure

The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

Mission and tagline reproduced from the source record.

Historical scorecard

Three perspectives. One record.

97.82Overall score
out of 100

96.92Financial score
out of 100

100.00Accountability & transparency
out of 100

These are the dataset’s historical numeric fields, not a current rating or a new DonorAPI.com assessment. Read the score context ↗

Financial context

Revenue, expenses, and composition

Total revenue · USD$14,801,999

Total expenses · USD$4,610,207

Program expenses

$3,826,471.81 recorded amount

83.0%

Fundraising expenses

$484,071.73 recorded amount

10.5%

Administrative expenses

$290,443.04 recorded amount

6.3%

Fundraising efficiency: $0.05 spent per $1 raised in donations, as defined in the source.

Expense shares are displayed as percentages. Component amounts in this collection match total expenses multiplied by the source ratios; rounding can leave a small difference from the total. The source does not supply a row-specific fiscal year. Field definitions ↗

Historical leadership record

The leadership information supplied

Recorded leader: Susan L-J Dickinson
Recorded compensation: $142,000.00
Recorded compensation percentage: 3.08%

These fields do not establish the current officeholder or current compensation. The metadata does not specify the denominator of the leader compensation percentage. Read with context ↗

Inspect all 23 original source fields

Exact source strings are retained below, including numeric precision. A blank value is marked as not reported; zero remains zero.

All 23 original fields for The Association for Frontotemporal Degeneration
Source field	Original source value
`ascore` Accountability & transparency score	100.0
`category` Category	Health
`description` Mission & description	The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.
`ein` EIN	41-2073220
`tot_exp` Total expenses	4610207.0
`admin_exp_p` Administrative expense fraction	0.063
`fund_eff` Fundraising efficiency ($ per $1 raised)	0.05
`fund_exp_p` Fundraising expense fraction	0.105
`program_exp_p` Program expense fraction	0.83
`fscore` Financial score	96.92
`leader` Recorded leader	Susan L-J Dickinson
`leader_comp` Recorded leader compensation	142000.0
`leader_comp_p` Recorded leader compensation fraction	0.0308
`motto` Tagline	Opening the gateway to help and a cure
`name` Charity name	The Association for Frontotemporal Degeneration
`tot_rev` Total revenue	14801999.0
`score` Overall score	97.82
`state` State code	PA
`subcategory` Subcategory	Diseases, Disorders, and Disciplines
`size` Source size label	mid
`program_exp` Program expenses	3826471.8099999996
`fund_exp` Fundraising expenses	484071.735
`admin_exp` Administrative expenses	290443.041

Identity & classification

At a glance

EIN: 41-2073220
Source category: Health
Source subcategory: Diseases, Disorders, and Disciplines
Recorded location: Pennsylvania (PA)
Expense-based size: Mid-sized
$3.5M–$13.5M in total expenses · source label: mid

Explore alongside

Related source records

Linked by source subcategory, prioritizing the same recorded state. Not a recommendation or ranking.

A useful next step

Keep the context.

Check current organizational information separately before making a giving decision. This record does not include an official website, donation URL, or current eligibility field.

Giving research guide ↗

Source: Charity Navigator Scores Expenses Dataset, version 1, attributed to katyjqian on Kaggle. Collection: May 2019; rating details mostly from 2017. Read attribution, scope, and reuse notes.